I'm sad for you mommy

"Mommy, do people die from Guillian Barre?" Bennett asked this question tonight. Bennett is not a child who feels the environment around him. In fact, his constant silliness and joy in the midst of our difficulties has been a wonderful gift from God throughout this time. Still, as his question revealed, he's starting to understand everything a bit more. He went on to comment, "Mommy, are you sad you have Guillian Barre? I'm sad for you mommy."

Cody feels it all more--probably because his weekly schedule is much more chaotic than Bennett's. Throughout this whole time, he has struggled with mommy's sickness. Still, he also makes us smile. He now likes to be called Dr. Cody as he pretends that he is taking care of mommy.

Rhonda continues to feel improvement with her back soreness and pain. Her GB symptoms have also subsided to pre spinal tap levels, although they continue to flare up with increased activity. Rhonda's headaches and vision problems continue, although if Rhonda stays on top of the headaches she can control the severity of them.

Both of us are now struggling with how to think about this issue. We remain hopeful, but we also start to wonder if we need to change from living like this will slowly get better over the next six months to thinking more about this issue as a chronic problem. These are not easy discussions. We often feel too tired or emotionally drained to go that direction. We pray for wisdom and grace.