Wow, I didn't realize it had been ten days since I last blogged. It's been a mixture of business, tiredness, and sometimes not knowing what to say (and not feeling like saying much). The past ten days have been quite an emotional rollar coaster ride. Two weeks ago, we had started to come to grips with a diagnosis of CIDP. Then, the visit to the doctor at Scott and White leads us down another path--the rejection of the CIDP diagnosis and more tests to gauge the extent of any nerve damage (this coming Friday). As you can imagine, we've felt a variety of emotions and thoughts (anger, frustration, feeling like we should have obtained a second opinion much earlier).
The rejection of the CIDP diagnosis is clearly good news. Nonetheless, no longer having a clear diagnosis makes us start to rethink everything we've been thinking and doing. If Rhonda's nerves are healing what is the source of the symptoms? Instead of making sure Rhonda rested to make sure her nerves healed and she does not have a relapse, do we need to really push more? The tests on Friday and some additional blood work may give us some answers but they may not. It has been especially hard on Rhonda as she has sorted through these issues. Please pray especially for our outlook in the midst of this uncertainty.
In our lives, we've started being a bit more active. Last weekend, we had our first family day out in quite some time as Rhonda joined us for ice cream. This weekend we enjoyed a great day at a friend's cabin near Belton. Rhonda was able to walk around by a creek a little and she feels like her legs are progressing (although the headaches remain). Even in the midst of these emotional ups and downs, I've especially felt our spirits lighten at times. We remain wary but hopeful and ever eager to find and rest in the truth.
Saturday, February 23, 2008
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